|
A very effective summer! The Crohn's disease meds are awesome (a combination of Prednisone, Entocort, and Pentasa,) and the GI doctor is a saint. There was the potential for some negative behavioral side effects from the Prednisone ('roid rage, essentially,) but we didn't see any. Both kids did get a little bit hairier, but neither became wolfman, and it falls out once they're off it. Minifobette's stools became completely perfect and solid, and stayed that way after stopping the Prednisone, so she's done with that part, and is now just maintaining with the other two. The doctor is encouraging me to try to add some foods back into her diet, but I have to admit I'm terrified to do so. So far we have one new food, and then she got sick with some bug from school, so we went back on hold for awhile. Minifob's stools got almost perfect, but his behavior started regressing just a few days off the Prednisone, so he's back on it for another month.
Not-so-funny story: at the pharmacy one month, they accidentally rang up the real price of the Entocort prescription, then undid it and put in the insurance copay. One month's supply of Entocort for one child? $805.95. No shit. Thank fucking God we have insurance.
But check this out! Minifob drew this in Kindergarten yesterday. Before the summer, he could barely form a legible letter, and couldn't use representational shapes at all. He's not just improving, he's catching up. I've been trying really hard not to jump the gun on any declarations, but he really is about 95% of the way to "maintained recovery" (i.e. symptom-free, but only if he stays on his diet/meds.)
One down (almost,) one to go.
|