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Old 01-27-2015, 07:12 AM   #944
Clodfobble
UNDER CONDITIONAL MITIGATION
 
Join Date: Mar 2004
Location: Austin, TX
Posts: 20,012
Yeah, I saw that. One step closer to them acknowledging that the genetic damage comes after conception, and is thus... dun dun dun... environmental.

As for how it's all going with us, it's going fantastic. "They say" (i.e., the general anecdotal reports on messageboards) that SCD takes 1-2 years for ulcerative colitis, 2-3 years for Crohn's, and 3-4 years for autism to achieve complete remission. Minifobette is a couple weeks shy of her 4 year anniversary, while Minifob is close to 3, but both have had a few small accidental exposures along the way.

At their last scope (18 months ago,) Minifobette was about 85% in remission, and Minifob had shown only minimal improvement, with outward symptoms to match in both. Nowadays Minifobette is outwardly recovered, with a few slight speech odditites as if she learned English as a second language (meanwhile, however, her teachers say she is picking up Spanish at a ridiculous rate, indeed as if she had already learned a second language and was working on her third.)

Minifob, on the other hand, has been massively improved for about 3 weeks now, since starting a new med that focuses on GI histamine dumping. Haven't had a single meltdown in those three weeks, and he has finally started making some progress on controlling his overwhelming stutter.

Just today in fact, my plan is to email his doctor and tell him that we want to try weaning off the immune suppressor and see if he can hold steady with this new med instead. We shall see.
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