11-11-2009, 08:09 PM | #526 |
Come on, cat.
Join Date: Nov 2003
Location: general vicinity of Philadelphia area
Posts: 7,013
|
I can't even imagine how hard it would be to restrict ALL foods from a kid, but I think it's the right thing to do, the fastest way to heal him and move forward. Sending you strength and patience vibes.
__________________
Crying won't help you, praying won't do you no good. |
11-11-2009, 09:01 PM | #527 |
I hear them call the tide
Join Date: Dec 2005
Location: Perpetual Chaos
Posts: 30,852
|
man, clod. that totally blows. Poor little guy, poor family.
__________________
The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart |
11-11-2009, 09:59 PM | #528 |
barely disguised asshole, keeper of all that is holy.
Join Date: Nov 2007
Posts: 23,401
|
Speechless, Clod. I hope and pray for a successful outcome for your kids. I wish I had a magic solution to this. I am constantly amazed at your resolve.
Sorry this suck so bad, but you are AWESOME!
__________________
"like strapping a pillow on a bull in a china shop" Bullitt |
11-11-2009, 10:37 PM | #529 |
UNDER CONDITIONAL MITIGATION
Join Date: Mar 2004
Location: Austin, TX
Posts: 20,012
|
Nah, see, I may be awesome during the weeks when my kids are making progress... but times like this, I swear to God I'm shoving him in front of the TV for upwards of 3 hours straight every day just to make him be quiet(er). It's not my proudest moment.
|
11-11-2009, 11:07 PM | #530 |
I hear them call the tide
Join Date: Dec 2005
Location: Perpetual Chaos
Posts: 30,852
|
um... clod... for many parents that's the norm. If the kids are lucky, the parents suggest they might want to do their homework while they watch. trust me on this. People Invite my kids over for marathon platdates and when i say "are you sure?" they say hell, yeah, they'll probably just watch TV or play video games most of the time".
__________________
The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart |
11-11-2009, 11:14 PM | #531 |
To shreds, you say?
Join Date: Aug 2004
Location: in the house and on the street-how many, many feet we meet!
Posts: 18,449
|
Clod, you should seriously ease up on your self. It's not like you're shoving him in front of the TV for three hours just to qui -
Umm lemme finish reading your post. j/k you know I think you are the 2nd best mom I know. |
11-11-2009, 11:16 PM | #532 | |
To shreds, you say?
Join Date: Aug 2004
Location: in the house and on the street-how many, many feet we meet!
Posts: 18,449
|
Quote:
I send them into the yard to play. We don't have a TV or Video games. Not even tetris or pong. I feel guilty about sending them outside to play instead of teaching them how to do something useful. |
|
11-11-2009, 11:21 PM | #533 |
I hear them call the tide
Join Date: Dec 2005
Location: Perpetual Chaos
Posts: 30,852
|
yup. I hear ya. of course it means mine are awesomely behaved on playdate because they get to look at the box with magic pictures.... ...and that is also invaluable for road-trips.
__________________
The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart |
11-12-2009, 01:48 AM | #534 |
The future is unwritten
Join Date: Oct 2002
Posts: 71,105
|
And you probably will again, that's life. After the crap you've been going through, the things you've had to learn, much of it on your own breaking new ground, it's a fucking miracle you haven't made more mistakes.
I think you've done a miraculous job, and I worry people don't realise how much you've sacrificed, how much of yourself you've put into the battle... especially the people closest to you. From what you've written about what friends/family have said and done, or at least proposed to do, they don't get it... and don't appreciate your efforts. I know your personal life is none of my business, but you've laid out so much in this thread, I'm concerned what toll this lifestyle is taking on you. Yeah, I know you don't have a choice, some might, but you don't. But please don't be too tough on yourself, you don't need or deserve that... mkay?
__________________
The descent of man ~ Nixon, Friedman, Reagan, Trump. |
11-12-2009, 04:11 AM | #535 |
Encroaching on your decrees
Join Date: Feb 2004
Location: An island within the south-west coast of Scotland
Posts: 7,016
|
What xoB said.
__________________
Living it up on the edge ... of civilisation, within the southwest coast of |
11-12-2009, 08:09 AM | #536 |
UNDER CONDITIONAL MITIGATION
Join Date: Mar 2004
Location: Austin, TX
Posts: 20,012
|
I think I forgot to mention, I did find a local support group of biomedical moms awhile back. We have a messageboard, and meet in person once a month--in the late evening, after we've all put the kids to bed, because if there's one thing these women understand, it's that Daddy can't do the bedtime routine by himself. They've been pretty invaluable.
|
11-12-2009, 11:37 AM | #537 |
The future is unwritten
Join Date: Oct 2002
Posts: 71,105
|
Cool, there's nothing like support from someone that's walked a mile in your(similar) shoes.
__________________
The descent of man ~ Nixon, Friedman, Reagan, Trump. |
11-12-2009, 11:45 AM | #538 |
Why, you're a regular Alfred E Einstein, ain't ya?
Join Date: Jun 2006
Posts: 21,206
|
What Bruce said, squared!
__________________
A word to the wise ain't necessary - it's the stupid ones who need the advice. --Bill Cosby |
11-19-2009, 02:37 PM | #539 |
is fleeing the scene
Join Date: Apr 2005
Location: Beautiful CO
Posts: 1,510
|
I don't even know what to say Clod other than wow, dammit, and here's a hug. (And you more deserve the three hours of TV time if it gives both of you a break.)
__________________
Once, in an interview, Chuck Norris admitted that he was not the most awesome thing ever. He declined to elaborate; but I believe we all know that he was referring to the existence of chocolate covered bacon. I'd rather be judged by twelve than carried by six. |
11-25-2009, 11:29 AM | #540 |
UNDER CONDITIONAL MITIGATION
Join Date: Mar 2004
Location: Austin, TX
Posts: 20,012
|
I'm very emotionally ambivalent about the last two days.
By some accident of calendar cramming, yesterday was both the day we started Minifob on the liquid diet, and his checkup with the neurologist, who hasn't seen him since April. I was stoked about the neurologist appointment. Because this is a guy who, while not a sanctimonious know-it-all like the pediatrician, did waffle on the possible effectiveness of the GFCF diet when I told him we had (just barely) started Minifob on it last time we saw him. So I was very excited to bring him back and show him our amazing progress. But we didn't even get to see him. The assistant lady (I don't know exactly what she is, but it's somewhere between the nurses who take your height/weight and the doctor himself) was suitably impressed with his gains, and asked a lot of interested questions about his dietary stuff... and then said that was pretty much it, we didn't need to come back unless something drastically changed. As if they saw this all the time, as if they hadn't told me 6 months ago that this wasn't going to make a difference. She just smiled and shrugged and said, "Whatever you're doing, it's working, so my advice is don't change anything." Maybe she was sparing me any discouragement from her humbug boss living in denial, or maybe she was protecting him from me. But at any rate, Minifob's no longer a viable candidate for any of the neurological drugs routinely prescribed for autistic kids. Good to know. Meanwhile, the liquid diet's going okay. He's not enjoying the drink mix, but he's willing to bargain individual swallows of it for things like another 5 minutes on SesameStreet.org, or another blow on the bubble wand. And when he isn't being specifically reminded about food, he's been in a really stellar mood. He's not making it as hard on me as his sister did, not by a long shot. Anyway, I finally got around to putting together a new progress video last night. Mr. Clod made fun of me for the final title screen, ("You don't have to go all Oprah about it...") but I told him he could bite me. |
Tags |
autism, food intolerance |
Currently Active Users Viewing This Thread: 1 (0 members and 1 guests) | |
|
|