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#466 |
Radical Centrist
Join Date: Jan 2001
Location: Cottage of Prussia
Posts: 31,423
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Desiree Jennings' doctor, Dr. Buttar, tweets that Jennings has been seizure free for a week now, down from 60 seizures per day.
Robert Scott Bell, on the Michael Savage show, is supportive, happy that holistic and detoxification treatment medicine cured her, while Johns Hopkins can't cure dystonia, only treat it: http://www.youtube.com/watch?v=z5pnI-dDH7s |
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#467 | |
barely disguised asshole, keeper of all that is holy.
Join Date: Nov 2007
Posts: 23,401
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Quote:
Is that really proof or just supposition?
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"like strapping a pillow on a bull in a china shop" Bullitt |
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#468 | ||||
Radical Centrist
Join Date: Jan 2001
Location: Cottage of Prussia
Posts: 31,423
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Desiree update: interviewed by Fox affiliate that first aired her story.
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VAERS describes acute encephalopathy as Quote:
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#469 | |
UNDER CONDITIONAL MITIGATION
Join Date: Mar 2004
Location: Austin, TX
Posts: 20,012
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Quote:
It's also important to understand that encephalopathy is an incredibly broad term that really just means some kind of neurological dysfunction. Autism, epilepsy, and a host of other diseases all fall under the encephalopathy umbrella. |
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#470 |
~~Life is either a daring adventure or nothing.~~
Join Date: Apr 2006
Posts: 6,828
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There are many types of encephalopathy. Some examples include:
Encephalopathy alters brain function and/or structure. It may be caused by an infectious agent (bacteria, virus, or prion), metabolic or mitochondrial dysfunction, brain tumor or increased intracranial pressure, exposure to toxins (including solvents, excess animal protein, drugs, alcohol, paints, industrial chemicals, and certain metals), radiation, trauma, poor nutrition, or lack of oxygen or blood flow to the brain. The hallmark of encephalopathy is an altered mental state. Depending on the type and severity of encephalopathy, common neurological symptoms are loss of cognitive function, subtle personality changes, inability to concentrate, lethargy, and depressed consciousness. Other neurological signs may include myoclonus (involuntary twitching of a muscle or group of muscles), asterixis (abrupt loss of muscle tone, quickly restored), nystagmus (rapid, involuntary eye movement), tremor, seizures, jactitation (restless picking at things characteristic of severe infection), and respiratory abnormalities such as Cheyne-Stokes respiration (cyclic waxing and waning of tidal volume), apneustic respirations, and post-hypercapnic apnea. I don't believe that autism falls under encephalopathy. I can understand your angle of of toxic-metabolic encephalopathy in regards to autism which would be symptomatic but autism in itself is asymptomatic. |
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#471 |
Snowflake
Join Date: Mar 2006
Location: Dystopia
Posts: 13,136
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You just Googled that 15 minutes ago, didn't you?
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****************** There's a level of facility that everyone needs to accomplish, and from there it's a matter of deciding for yourself how important ultra-facility is to your expression. ... I found, like Joseph Campbell said, if you just follow whatever gives you a little joy or excitement or awe, then you're on the right track. . . . . . . . . . . . . . . . . . . . . . . . . . . Terry Bozzio |
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#472 | |
UNDER CONDITIONAL MITIGATION
Join Date: Mar 2004
Location: Austin, TX
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Quote:
I have no idea what "autism in itself is asymptomatic" is supposed to mean. |
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#473 |
~~Life is either a daring adventure or nothing.~~
Join Date: Apr 2006
Posts: 6,828
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lol yes flint I can too be an instant expert hehheh
asymptomatic = People can be on the autism spectrum without having any symptoms. In other words there is nothing to cure. It is not a disease. No I am not a neurologist.I am not talking about your experience. I get that. I am not sure how pointing that out is helpful or respectful since you don't even know who you are talking to. As far as you know I could be a parent just like you with a child deemed autistic/pdd/aspergers. I might be a special ed IA working with autistic kids. You just never know and your experiences are true for you as I said but you are about treating organically the toxins that create reactions in your kids. I say great! |
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#474 | |
UNDER CONDITIONAL MITIGATION
Join Date: Mar 2004
Location: Austin, TX
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Quote:
It's not about one experience versus another. You wrote an incorrect statement regarding the neurological definition and scope of encephalopathy. It wouldn't matter if you were an ASD parent, a special ed IA, or an actual degreed neurologist, your statement would still be factually wrong. |
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#475 |
~~Life is either a daring adventure or nothing.~~
Join Date: Apr 2006
Posts: 6,828
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I should have said not having any symptoms of a disease.
Just because some people have trained themselves to function day to day they still may be on the autism spectrum. One can train oneself not to present those traits but still be on the autism spectrum. I am trying to say and not very well is that the encephalopathy is a symptom and the autism is not. One is symptomatic and one is not. So I agree with UT. The symptoms of encephalopathy can be treated but autism in itself is not a treatable disease. Autism isn't a symptom so it is not a disease referring what you said here: [/quote clodfobble] It's also important to understand that encephalopathy is an incredibly broad term that really just means some kind of neurological dysfunction. Autism, epilepsy, and a host of other diseases all fall under the encephalopathy umbrella. [/quote] ps. I'm tired so lets just agree to disagree. ![]() |
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#476 |
UNDER CONDITIONAL MITIGATION
Join Date: Mar 2004
Location: Austin, TX
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I'm sure UT is thrilled to have you lend your credence to his side.
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#477 | |
The future is unwritten
Join Date: Oct 2002
Posts: 71,105
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asymptomatic = adjective: having no symptoms of illness or disease. If there are millions of kids with Autism, and Autism in asymptomatic, how the fuck do we know they have Autism? That makes no sense at all. ![]()
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The descent of man ~ Nixon, Friedman, Reagan, Trump. |
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#478 |
Radical Centrist
Join Date: Jan 2001
Location: Cottage of Prussia
Posts: 31,423
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Thanks for the corrections C. Desiree developed symptoms in early September and was treated by Dr. Buttar in late October.
Totally unfair leading question: based on what you know, would you have Dr. Buttar treat your son? |
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#479 |
UNDER CONDITIONAL MITIGATION
Join Date: Mar 2004
Location: Austin, TX
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Based on what I know, I'd consider it, but I'd have to meet with him individually and discuss things with him to know for sure. He is following a general treatment path that I agree with; however, like any medical procedure, it's entirely possible to screw it up in very dangerous ways. The thing that is novel is not the treatments he's using, but rather what he's using them for. Chelation drugs have been around forever, and are the standard accepted treatment for known cases of heavy metal poisoning. Anti-inflammatories are accepted as routine for a host of diseases. Mitochondrial dysfunction has likewise been on the medical books for decades. The only "alternative" part about it is that he (and hundreds of other doctors around the country) is using these treatments on conditions that are not generally accepted to be rooted in heavy metal poisoning, or inflammation, or metabolic imbalance. But there are of course lab tests to definitively confirm these conditions, and responsible doctors in Dr. Buttar's field perform them and treat based on their results. (On the other hand, it's been my experience that mainstream doctors will refuse to even consider testing for these other, known conditions, because that would be a tacit admission that they could somehow be connected to the neurological symptoms, which is a great big political minefield that they all want to avoid.)
So I would need to find out what sort of tests he runs and what medical justification he uses for each treatment. For example, there are some DAN doctors who will immediately prescribe antifungals for any autistic child who comes to see them, because that is a commonly needed treatment. But if they are not running the stool and urine cultures to determine that there actually is an infection, what strain it is, and what is the most appropriate drug and dosage to use in that case--which is something I can (and would continue to do, in this hypothetical case) confirm with other mainstream doctors, even while they shake their heads at the lab reports and marvel at what a complete coincidence it is that my son happened to have all these underlying conditions like I said he did--then I would not let him treat my child. Actual conversation with my pediatrician: Me: So if I brought my daughter to you, and said that I caught her eating paint off an old building, what would you do? Her: Well, we'd want to run some tests on the paint to see if it contained lead. Me: What if we ran across it on our vacation, hundreds of miles away, and you couldn't test the paint? Her: In that case we would need to go ahead and test her for lead poisoning. Me: How would you do that? Her: The only way to do it would be to give her a small amount of the drugs used to pull lead out of the body, and if elevated levels of lead came out in her urine, then we'd know she needed to continue to be on those drugs until it was gone. Me: So if I showed you a lab report that showed she had a bunch of lead in her system, you would be totally fine with treating that? Her: Yes, that would be proof the paint had lead in it. Me: What if I lied, and she hadn't eaten any paint? Her: Well the lab test would then show-- Me: No, the lab test still shows she has tons of lead in her system, but I'm telling you she didn't come in contact with any major known sources of lead in the last few weeks. Her: Well the lead must have come from somewhere. Me: Right. So would you order the tests for her right now? Her: No, if she isn't showing symptoms of lead poisoning, and you didn't see her come in contact with any, then there's no point in ordering the test. Me: What are the symptoms of lead poisoning? Her: Well, they're hard to detect, but things like confusion, abdominal problems, cognitive problems... Me: My daughter has all those things. Her: But your daughter has autism, so that explains them. Me: So if I got another doctor to order the lab tests, and brought them to you, would you be willing to treat her for lead poisoning then, if the tests showed she needed it? Her: Well... no I would recommend you have that doctor treat her. I'm not going to be comfortable treating her for a condition I know she doesn't have. Me: Even if the lab tests--the same lab tests you would order if I lied and said she had eaten lead paint--showed she did have the condition? Her: Yes. Assuming Dr. Buttar is responsible in his use of testing, the only difference between him and the rest of the medical community is he's actually bothering to investigate what might be wrong, rather than writing it off as something tragic and unknowable. |
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#480 | |
Radical Centrist
Join Date: Jan 2001
Location: Cottage of Prussia
Posts: 31,423
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Quote:
Followup B: Do you believe that Dr. Buttar's treatments solved it? |
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