Any Decent Pain Groups?

I have been doing Yoga and meditation for over twenty years, been in pain for a long time, so have been in the pain system for a while.
As for pot, I smoke and do Leary biscuits from time to time, but try not to have it in the house. It helps with nausea and muscle spasms better than anything else (I can't take marinol, it makes me very ill). But, I have a two year old and, mainly, do not like to jeopardize my wife's job due to the fuck-head anti-plant Nazis who like to see people suffer so textile and lumber firms continue to make their profits as they drink their martinis. That is the fact, if you are against medical marijuana you want people to suffer, end of story.
Until recently, I have had a very positive outlook on this, and still know that everyone has their shit, this just being mine... just a bit overwhelmed right now.

[wolf]

I was thinking more on the order of getting folks from other wheel-chair bound groups on board as far as approaching local businesses regarding access ... but some of the support groups may have enough similar issues. They tend to be cliquey, though ... if you're not one of them, particularly, you're the enemy.

I have already experienced that... not so much "enemy" but outsider. At first they will talk about how welcome I am, then never tell me when the next meeting is. Had that with a depression group already, made-up, I later found, of those with mental disorders.

[xoxoxoBruce]

Originally Posted by rkzenrage

snip~Though I suspect a group of older women who do not deal with the complexities that I do nor the pain levels, ~snip

How do you know they don't deal with the same pain levels? Even talking to them about pain, it would be hard to compare because a lot depends on attitude.

They, being older and their pain level increasing over a longer time line, gives them a chance to build a tolerance and acceptance. They probably have a much more modest view of their expected mobility, complacency if you will.

You, however, have apparently had an accelerated increase in pain, plus you have things you want to do, places you want to go. That makes it much harder on you because it's a much bigger obstacle to the life you've been used to.

Winners on Wheels... again, I'm going to call, but I suspect that it is not about dealing with illness and pain but specific to dealing with being in a chair and one event that put them there.

You may be right but it's worth a shot. They maybe open to discussion on anything and I sure they've all had to deal with being overwhelmed at some point.

Good luck in finding the support you're looking for and remember you've still got us.

That was poorly worded, I did not mean to imply that their pain was "less" than mine... just different. I have more types of pain than just that from osteoporosis. I am sorry if it seemed that I meant to belittle their pain... I would not do that, as I live with their pain every day.
Just because they are older does not mean they have been dealing with this longer, my first diagnosis was at 13.
I do hope you are right... and about this group. I recently reached out to a group and was shunned. It was very painful & has a lot to do with how I feel now.

The lady at the osteoporosis group sounded awesome.... I cannot thank you enough for finding this for me.
Not getting my hopes-up yet, but she says that one of their members is a man in his thirties, a cop and another, his dad. She was fine with the fact that I have other issues, says that the all talk about their other stuff. Was happy with my past in meditation and yoga and said they may like to have me talk to the group about it because they are always looking for exercises they can do. Being useful would mean a lot... not getting hopes-up.

Thank you.

[WabUfvot5]

Is your doctor willing to prescribe what you need to live a decent life? Most docs who deal with high levels of pain know the difference between need and addiction.

That is a very general statement that also sounds like a loaded question.
Are you trying to say something else?

[Stormieweather]

Originally Posted by Jebediah

Is your doctor willing to prescribe what you need to live a decent life? Most docs who deal with high levels of pain know the difference between need and addiction.

I take that to mean that there are some people who fake the level of their pain in order to feed an addiction, but your doctor should be able to see your obvious need for more effective pain medication.

I hope this group works out for you Rkzenrage, it does help to know you're not alone

Stormie

My medication and therapy are changed constantly... I get a surgical epidural on Tuesday (sometimes they work, sometimes they do not, but they are always a double-edged-sword, doing long term harm for short-term relief, along with the risk of being put under).

[Elspode]

I don't think it was a loaded question...I think it was just intended to encourage you to seek out the strongest stuff you can get your hands on, if indeed you can get your hands on it. No one is suggesting anything sinister.

I can't remember why I was doing it, but a few months ago I was looking for chronic pain resources online...and there's virtually *nothing*. Now *that* is sinister...almost as though someone (the drug companies, perhaps) don't want anyone else mucking about in their playground.

You have a support group right here on The Cellar, man. Use us as you see fit, and don't worry about appearances. You have problems, we have soft shoulders.

I did not accuse, it was a question. I am often asked leading questions with a lot of reasons behind them. I don't know why but people have weird reactions to those in pain.
Strongest are not always best, I don't react to Opiates the same way most do. I cannot sleep on them and they change my personality when on large quantities. I have had very bad experiences with them... more, and more varied than I can say. Most Dr.s won't listen to me and some have given them to me without my consent.

BTW... this group really helps me with my depression, thanks all of you.
Went to my Dr. appt. and he did not lock me up after I told him about my recent "impulses".
He really wants me to address the offer by my local librarian (reading to kids) when we get the new lift for my chair and he is talking about starting a pain group in his practice.
Again, I cannot thank you, Wolf, for helping find another group to try. One that sounds more promising than any that I have spoken to before.
My parents are very happy about it, they are a bit freaked-out about my recent downturn.
I have not discussed it here.

[WabUfvot5]

Nope, not trying to ask a loaded question; thought it might be a bit blunt if I asked if your doctor thought you were an addict. Hard to get an idea since I don't know you or your situation well. I know folks who howl about their pain (granted it's probably not like yours) and will rarely get anything for it. If I was trying to say anything it's that there are a lot of people in pain who don't have access to what would help them.

Opiates are often prescribed because they alter the way your mind percieves pain. Your reaction to them explains why the solution is not as simple as getting you more morphine or oxy.

Nurses may be of good help to you. They often see a lot of people in pain and you're far from the only one who has a negative reaction to opiates.

Hope that helps. Medical problems can be extremely frustrating I know.

[wolf]

Well, there's these guys you probably already know about and there are several pain management specialists on staff here.

Perhaps they didn't know that a group might be a welcome addition to their area of practice? Or at least involvement with a therapist specializing in pain management issues?