Life's a...

[Clodfobble]

Originally Posted by Radar

I was shocked at first. Generally when people say they've "lost" their children to a disease, they mean their children died. I'm not discounting what you've gone through, I'm just talking about the words you use to describe it. I can't imagine the pain of going through my daughter having a life long illness, let alone actually losing her.

I say lost because the disease affects their brains. The children I have now are not the children they might have been. It's like when you "lose" someone to Alzheimer's--their body is still there, and you want to believe their mind is still in there somewhere, but it's locked up and you can't reach it.

And yet, I'd certainly rather have my ill children than watch my baby die in my arms in the hospital. There's nothing I can say to my friends, nothing at all.